James is probably moving to another floor in the next day or two. We are having a planninng meeting at the hospital on Thursday and hopefully he will be able to start some rehab components on his new floor. He will be getting his central line (PICC line) removed in the next couple of days too. The only tube left is his feeding line. The specialist that James needs to see are all in Victoria, so in some ways I am regretting transferring to Comox, but it has been nice to touch base at home and the staff at the Comox hospital are lovely. They have yet to find him a wheelchair that fits him though. The one that they had a very short and narrow back and he was super uncomfortable in it. It is also held together with electrical tape in places and has quite a wobble. He is sitting up in a recliner during the day, right now, which is better than staying in bed, but he cant sit up straight in it and work his core muscles. James had a great physio session yesterday! They decided to find out if he had the core strength to hold himself sitting. It went much better than expected! It took a while to get his head up. He has major muscle contractures that pull his chin to his chest. Physio was able to work him up to a chin up position though and he looked great! He cant balance himself in that position but he can hold his hips and shoulders fine! James has also started to ask to use the bedside urinal this week! He crosses his legs to let us know he needs to urinate!
I thought life would be simpler being home, not true! I have less time and feel more stretched than ever. I only spend a couple of hours a day at home, and I sleep at home. When I am home I am cleaning, doing laundry, etc.
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