James had a great time at Halloween. There was a Halloween dance on the Wednesday evening before Halloween, and James dressed up in his usual old costume. It is a freaky death costume with glowing eyes. He loves it. The dance was great. Lots of fun. James got out there and danced In His chair a few times and he danced one song with me helping him, out of his chair. Most of the therapists dressed up, and each group of therapist dressed in a theme. James' thrapists were all characters from the game, Clue. One of the other therapist groups were all muppets, and the teachers in the classroom were all Star Trek characters. It was fun.
James has been doing fantastic at speech. He is still difficult to understand, but way better than he was! His speech therapist also feels that he is now a good candidate for palatal surgery. They would add some bulk to the back of his palate so that he can close the nasopharyngeal port ( the space between your nose and mouth at the back of your throat) with less effort. This will really help with his speech clarity.
James has a discharge date being talked about now. They are talking about just before Christmas. So we would probably head back on the 19 th or 20 th of December! There are a few glitches though. All the supports that I fought so hard to get started back home for James, have been completely cancelled! I was told that we have to start at the beginning and go through the application process all over again. It took me a year of nagging and fighting to get the supports going last time! If we can't get this sorted out before we go home, I may have to quit my little job on the bus to stay home. The social worker here, is going to help by seeing if we can appeal the decision they made to totally drop him from the funding. Nothing is ever easy.
No comments:
Post a Comment