Monday, 25 June 2012
James got his transfer to Victoria rehab on Thursday last week! So James and I are in Victoria now. He is doing well and enjoying his therapy sessions. He tryed to pull his feeding tube out this weekend though. He got all the clamps and "hardware" off of the tube yesterday morning and had to go to x ray to make sure that it was still in place. I have asked physio to come up with lots of weekend homework for him this week! This boy needs to keep busy! There are no therapy sessions on the weekend so I think that it had a lot to do with boredom. It was interesting too, I woke up last night with a start early in the morning hours. I was having a dream that James was trying to pull the tube out again. This morning I got to the hospital to discover that he pulled the tube apart again early this morning! He didnt sleep really at all last night and was totally exsausted this morning. He could barely keep his head up, or his eyes open. He was a trooper though and did all his therapies. He perked up a bit during physio though, and then had a great nap mid day. His feeds changed today too. He was being fed all night at a slow rate, now he is being fed at a faster rate, three seperate times. Tonight is the first night in a long time that he can sleep without being disturbed or having to stay sitting up. He will be able to lie right down from 11:00 tonight until 530am. He has a special call bell on his bed too, and he has used it. It is a flat disc that he just needs to push. Today in physio he got to try a new machine in the gym ( after an assisted walking session with the physio team) The machine is called Nu-step. He sits on a seat and it has walking peddals. It also has "ski pole type" bars for your arms. He really enjoyed it and had fun trying to make it go as fast as he could. He did a great 5 minute session on it and we will increase the time he spends on it each session. The wheelchair he has here is a lot different than the one he had in Comox too. This one has very little support and no head rest. He is doing really well with it. I do try to get him to have a couple of short lie down in bed times during the day right now to rest his neck and shoulders. He seems to need to have a break from the chair less each day though. All in all things are going well.
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Great to hear such good news!!! How much longer does he have to have his feeding tube in for? Sounds like he'll be glad to have it out.
ReplyDeleteSo cool to hear about the neat machine.
ReplyDeleteExciting update! Thanks! Sorry to hear he was fussing with the tube, thankfully it wasn't displaced! The Nustep machine sounds so cool, he sounds like he is doing great! Say hi to him from the TCU crew :)
ReplyDeleteWe are watching (vicariously) James making great progress considering where he has come from. A lot of credit goes to you, Dawn, for always being there for him, and ensuring that he has appropriate treatment and stimulation. Also, it's obvious that James is fighting to regain some control of his life. Lots more work to do, but let's remember how far he has come since January 25.
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